The LCC Foundation Blog

LCC Treatment Roadmap Report

LCC Treatment Roadmap Report

Introducing the LCC Treatment Roadmap At the Global LCC Family & Research Conference in St. Louis, families, clinicians, and researchers shared a single room and a single goal: to learn from one another and to accelerate the path toward treatment. That goal took...

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Relive the Joy of Our First-Ever LCC Conference

Relive the Joy of Our First-Ever LCC Conference

Relive the Joy of Our First-Ever LCC Conference Thirty-five families, researchers, and advocates. Four days. One room, for the first time ever. From July 22 - 25, 2026, the LCC community gathered in St. Louis for an event that had been years in the making: the...

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LCC/Labrune Syndrome Parents:

Please register your LCC/Labrune Syndrome Child in the official LCC syndrome patient registry and help advance treatments for all patients worldwide. The information you share in the global registry is the most powerful way to deepen the understanding of LCC/Labrune syndrome and help the entire LCC community.

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