Together. Farther. Faster.
There is no cure for LCC/Labrune Syndrome yet. This year, families in the US and Canada are coming together to change that.
Help us raise $50,000 by December 31 for LCC research.
Canadian donors: use the Canada button to give in CAD, avoid currency fees and receive a Canadian tax receipt.
Your gift goes further this year
Two matches multiply every gift until December 31:
- US gifts are tripled. The Founding Families Match adds $2 for every $1, up to $17,500. A $100 gift becomes $300.
- Canadian gifts are doubled. A generous Canadian family is matching every Canadian gift dollar for dollar, up to $5,000 CAD. A $100 gift becomes $200.
Every gift from either country counts toward the same $50,000 goal.
What Your Gift Makes Possible
LCC is rare enough that it doesn’t attract the research funding more common diseases do.
For families living with LCC, philanthropic support doesn’t just add to the research. It pays for it.
Research toward Clinical Trial Readiness for LCC/Labrune Syndrome
A growing patient registry that gives researchers the data to develop and test treatments
Direct support for patients and families facing a diagnosis with few resources and few answers
Awareness that helps more families get an early, accurate diagnosis
Giving from Canada?
We’ve partnered with Myriad Canada, a registered Canadian charity, so Canadian donors can give in Canadian dollars and receive a Canadian tax receipt. Gifts made on our US page are charged in USD and are not eligible for a Canadian receipt, so please use the link below.
