Happy Spring! I hope your March has been a good one! Our March has consisted of two work trips for Danny, soccer and flag football, pre-operative appointments for Ben, G-Button placement on the 18th, Ben’s 11th Birthday celebration on the 24th and a wonderful visit with extended family. The March Madness campaign that our Board Member, Lexi is running has been really fun too! Thanks to Lexi for organizing and to all who have donated and are participating! I can’t wait to see who wins the Championship Game on the 8th of April!
Thank you to all who have setup monthly contributions! LAUREN JOHNSTON YOU ARE THE WINNER THIS MONTH FOR THE SIMPLE MODERN 40oz Customized Trek Cup with Handle!
Happy Easter to those who celebrate! HE is Risen!
I’m looking forward to an exciting April that includes a community yard sale for us here in the STL area, and a Silent Auction for our Canadian friends!
Thank you all for being here and supporting our passionate cause!
With LOVE + HOPE,
Ashley
Ways to Support
Donate! Choose a one-time gift or monthly contribution! Does your Company match gifts? Here’s our tax EIN to check: 88-1908603
Raise Awareness and look great doing it
Patient Tribute
Christoper Ainsworth was born in May of 1969 and grew up in Aurora, Colorado. He graduated college with a Bachelor’s Degree. He was employed in workforce management at Sprint and Blue Cross Blue Shield. He was husband to Tammy and father to Austin. Chris faced many health challenges throughout his life. At the age of 5 he was diagnosed with Type 1 Diabetes due to seizures. It is now believed this was a misdiagnosis. He was diagnosed with LCC/Labrune Syndrome in 2013 at the age of 45 after becoming violently ill. There were cysts/calcifications and around those were fluid sacs that put pressure on his brain. He lovingly referred to these cysts as marbles in his head. He always had the best sense of humor. He would tell the doctors, 1more trip in the office and he gets a free
donut! He started losing his ability to see in 2017 due to surgeries to remove cysts in the brain. He was always so strong and never complained.
Despite all of his hardships, Chris lived life to the fullest with a smile on his face. He always had a positive attitude and encouraging words to give others.
From his wife Tammy: “He was the best father to our son Austin. He went to EVERY game to support him, even with nephrostomy tubes coming out of his back! Soccer, football, basketball, baseball, volleyball, lacrosse, pool games… he was Austin’s biggest fan! He went on walks and uplifted and supported both of us. He loved Mexican food! He made me laugh and I only saw him cry twice… once when Austin was born and once when he was told he would never see again. He started losing ability to walk around October of 2021. He lost his ability to talk or use his left side in 2021 after a seizure and a fall down the stairs. Chris was my Rock and the only reason I know what real love is.” I love you my Honey
•••Your forever girl!! Tammy.
Chris lost his battle with LCC/Labrune on March 8, 2021at the age of 51. Tammy shares that Chris was a good Christian and she is blessed to KNOW he is with The Lord!!.!,
Chris leaves behind his son Austin Ainsworth and wife Madison. Tammy, his wife, and best friend. His devoted mother Mary.
Tammy’s mother Judy who loved him like a son. David (his father) and step mother. Sisters, Lisa and Dana. Brother in Law, Robert. Brother and Sister, Keith and Barbie Dahl. Brother in law, Clint. Numerous nieces and nephews that loved him dearly. (David, Casey, Nicole, Ashlee, Wesley, Cora and David Moore) Aunts and Uncles and numerous friends! Poppy, his step Dad passed away 3 months before and walked him into heaven!!
He is missed for his laugh, smile, jokes.. and above all for his patience and love!