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A Letter from Our Founder This October has been a month of sharing our journey and making strides in raising awareness for LCC/Labrune Syndrome, filled with meaningful events, exciting collaborations, and fresh opportunities. One of the highlights was attending the...

A Letter from Our Founder Hi Ashley, I’m thrilled to share some exciting updates on what’s been happening this past month at The LCC Foundation! In September, we kicked off our Hours for Hope: 65 Hour Movement Challenge, for Leukodystrophy Awareness month, and I’m so...

A Letter from Our Founder Hi Ashley, I hope this message finds you well. As we wrap up another busy and fulfilling month, I wanted to take a moment to share some of the highlights and updates. Your support and dedication have been a constant source of strength for us,...

A Letter from Our Founder Dear Ashley, I trust that you're finding moments of joy amidst the heat of July. As we navigated through this month, filled with both busyness and emotions, I want to acknowledge the news our family received regarding our oldest son, Zac's,...

In the whirlwind of June, filled with a medley of foundation engagements and personal milestones, the month unfolded with a mix of meaningful experiences. Among them, I delved into the realms of advocacy at the Global Leukodystrophy Initiative Clinical Trials Network...

It's hard to believe we are wrapping up another month. May marks the end of another school year for my boys. It's such a bittersweet feeling. We are excited for summer trips and no alarm clocks, but saying, "see you later" to friends is difficult. It is especially...